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Genetic Counseling and Ethical Issues for Autism
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@MISC{Mcmahon_geneticcounseling,
author = {William M. Mcmahon and Bonnie Jeanne Baty and Jeffrey Botkin},
title = {Genetic Counseling and Ethical Issues for Autism},
year = {}
}
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Abstract
Exciting progress is being made in the journey toward discovery of genes conferring risk for autism and autism spectrum disorders. Currently, genetic counseling for idiopathic autism rests on clinical diagnosis and empiric risk estimates. While no genetic test for risk of autism currently exists, it is possible that such a test may emerge in the near future, and that commercial availability may precede adequate understanding of test characteristics. The complexity of multifactorial conditions like autism raises a host of ethical and counseling challenges. For families to benefit from new genetic knowledge about autism, it will be important for their practitioners to be knowledgeable about the issues, utilize appropriate educational interventions and emerging management options, and help families across the cultural spectrum cope with these challenges. 2006 Wiley-Liss, Inc. KEY WORDS: autism; autism spectrum disorders; genetic counseling; genetic testing; ethics
Keyphrases
genetic counseling ethical issue autism spectrum disorder management option idiopathic autism rest near future appropriate educational intervention multifactorial condition cultural spectrum cope adequate understanding genetic testing key word test characteristic genetic test empiric risk estimate new genetic knowledge counseling challenge commercial availability exciting progress clinical diagnosis
