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32
Children with chronic physical disorders: Maternal reports of their psychological adjustment
- Journal of Pediatric Psychology
, 1988
"... Advances in biomedical science have resulted in dramatic improvements in the medical care of chronically ill and handicapped children. Past measure-ment problems have resulted in a lack of clarity regarding the psychological adjustment of these children. The mothers of 270 chronically ill and han-di ..."
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Advances in biomedical science have resulted in dramatic improvements in the medical care of chronically ill and handicapped children. Past measure-ment problems have resulted in a lack of clarity regarding the psychological adjustment of these children. The mothers of 270 chronically ill and han-dicapped children were administered the Child Behavior Checklist in an at-tempt to identify patterns of behavioral functioning across six pediatric chronic disorders: juvenile diabetes, spinabifida, hemophilia, chronic obesity, juvenile rheumatoid arthritis, and cerebral palsy. In general, it was found that children in all chronic disorder groups were perceived by their mothers as evidencing on the average more behavioral and social competence problems than expected based on norms for children in general. However, their be-havioral and social adjustment was reported as better than that of a norma-tive sample of children referred to mental health clinics. There were essentially no differences between children with different chronic disorders in terms of behavior problems and social competence. The results were taken to sup-port the view that these children were as a group at risk for adjustment
Paternal involvement in the management of pediatric chronic diseases: Associations with adherence, quality of life, and health status
- Journal of Pediatric Psychology
, 2006
"... Objectives This article reports associations among paternal involvement in pediatric chronic disease management and child outcomes. Methods The Dads ’ Active Disease Support scale (DADS) and measures of treatment adherence, quality of life, health status, and health care utilization were obtained fo ..."
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Cited by 22 (0 self)
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Objectives This article reports associations among paternal involvement in pediatric chronic disease management and child outcomes. Methods The Dads ’ Active Disease Support scale (DADS) and measures of treatment adherence, quality of life, health status, and health care utilization were obtained for youths with six chronic diseases, with complete data sets obtained from 190 couples. Results Paternal involvement was not associated with these outcomes among younger children. Among adolescents, mother-reported and father-reported DADS scores indi-cating more paternal involvement were associated with maintenance, rather than deterioration, of treatment adherence and more favorable quality of life. Youths ’ health status and health care utilization were not related significantly to paternal involvement. Conclusions More paternal involvement was associated with more favorable adherence and quality of life among adoles-cents but not associated with health status or health care utilization. Longitudinal studies could verify whether paternal involvement merits clinical intervention. Key words coping; fathers; involvement; pediatric chronic disease. Studies of the impact of childhood chronic illness on the family have tended to focus on mothers both as study participants and as the focus of investigation. Mothers bear the brunt of the practical (e.g., Anderson, Auslander,
Psychosocial and family functioning in children with insulin-dependent diabetes at diagnosis and one year later
- Journal of Pediatric Psychology
, 1996
"... Examined the initial impact and subsequent adjustment to the diagnosis of insu-lin-dependent diabetes mellitus (IDDM). Children between 1 and 14 years of age and their families were assessed several weeks after diagnosis and again a year later using standardized measures of child behavior, parental ..."
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Cited by 20 (2 self)
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Examined the initial impact and subsequent adjustment to the diagnosis of insu-lin-dependent diabetes mellitus (IDDM). Children between 1 and 14 years of age and their families were assessed several weeks after diagnosis and again a year later using standardized measures of child behavior, parental mental health, and family functioning. Immediately after diagnosis, the children and both parents exhibited mild symptoms of psychological distress but these had largely resolved at 12-month follow-up. The impact of IDDM diagnosis on family functioning varied with informant, SES, and the age of the child, with an overall tendency for families to become less flexible over the year. Findings suggest that most children and their parents exhibit satisfactory individual adjustment after a period of initial stress but family functioning is affected in complex ways. Serial follow-up of the cohort is planned to establish whether the current findings are predictive of longer term outcome. KEY WORDS: chronic illness; diabetes; adjustment; behavior problems; parental mental health; family functioning.
Siblings of children with a chronic illness: A meta-analysis
, 2002
"... Objective: To review the literature pertaining to the siblings of children with a chronic illness. Methods: Fifty-one published studies and 103 effect sizes were identified and examined through meta-analysis. Results: We found (1) a modest, negative effect size statistic existed for siblings of chil ..."
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Cited by 19 (0 self)
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Objective: To review the literature pertaining to the siblings of children with a chronic illness. Methods: Fifty-one published studies and 103 effect sizes were identified and examined through meta-analysis. Results: We found (1) a modest, negative effect size statistic existed for siblings of children with a chronic illness relative to comparison participants or normative data; (2) heterogeneity existed for those effect sizes; (3) parent reports were more negative than child self-reports; (4) psychological functioning (i.e., depression, anxiety), peer activities, and cognitive development scores were lower for siblings of children with a chronic illness compared to controls; and (5) a cluster of chronic illnesses with daily treatment regimes was associated with negative effect statistics compared to chronic illnesses that did not affect daily functioning. Conclusions: More methodologically sound studies investigating the psychological functioning of siblings of children with a chronic illness are needed. Clinicians need to know that siblings of children with a chronic illness are at risk for negative psychological effects. Intervention programs for the siblings and families of children with a chronic illness should be developed. Key words: pediatric chronic illness; siblings; meta-analysis; psychological adjustment. Between 5 % and 40 % of children suffer from a chronic illness (Newacheck & Halfon, 1998; Perrin & MacLean, 1988). Williams (1997) defined a chronic illness as a “medically diagnosed ailment with a du-ration of 6 months or longer, which shows little change or slow progression ” (p. 312). In the United States, between 4 and 7 million children suffer from one or more chronic illnesses, and about one-half to one million of those children suffer from a severe chronic childhood disability (Newacheck & Halfon, 1998; Patterson, 1988). In all likelihood, these fig-
Vale dictum: An editor's view of the field of pediatric psychology and its journal
- Journal of Pediatric Psychology
, 1992
"... published 1988-1992. Articles published during term are analyzed in terms of ..."
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Cited by 16 (1 self)
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published 1988-1992. Articles published during term are analyzed in terms of
Transactional patterns of child, mother, and father adjustment in insulin-dependent diabetes mellitus: A prospective study
- Journal of Pediatric Psychology
, 1997
"... Utilized both interview and self-report methods to examine transactional patterns of child, mother, and father adjustment in a sample of children and adolescents with insulin-dependent diabetes mellitus (IDDM). Overall, levels of child and parental adjustment were relatively stable over the 1-year s ..."
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Cited by 14 (1 self)
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Utilized both interview and self-report methods to examine transactional patterns of child, mother, and father adjustment in a sample of children and adolescents with insulin-dependent diabetes mellitus (IDDM). Overall, levels of child and parental adjustment were relatively stable over the 1-year study period. Regres-
Attributions, coping, and adjustment in children with cancer
- Journal of Pediatric Psychology
, 1997
"... Assessed the influence of children's attribution style, coping style, social compe-tence, parent coping, and demographic variables on the psychosocial adjustment of 86 pediatric oncology patients. Utilizing hierarchical multiple regression pro-cedures, nearly one half of the variance in child d ..."
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Cited by 12 (1 self)
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Assessed the influence of children's attribution style, coping style, social compe-tence, parent coping, and demographic variables on the psychosocial adjustment of 86 pediatric oncology patients. Utilizing hierarchical multiple regression pro-cedures, nearly one half of the variance in child depression was predicted by children's avoidance coping, depressive attributional style, and social compe-tence. Child anxiety was predicted by a depressive attributional style, avoidance coping, and age at diagnosis. Child externalizing behavior was predicted by a depressive attributional style, parents ' anxiety and SES. Implications for inter-ventions and future research are discussed. KEY WORDS: children; cancer; adjustment; coping style; attributions; parent coping.
Behavioral adjustment and social functioning of long-term survivors of childhood leukemia: Parent and teacher reports
- Journal of Pediatric Psychology
, 1997
"... Obtained parent and teacher reports of behavior and social competence for children who were survivors of acute lymphoblastic leukemia (ALL). At follow-up, children were 5-18 years of age, 48 months postdiagnosis, in first continu-ous remission, and off chemotherapy. Each child had been randomized to ..."
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Cited by 10 (0 self)
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Obtained parent and teacher reports of behavior and social competence for children who were survivors of acute lymphoblastic leukemia (ALL). At follow-up, children were 5-18 years of age, 48 months postdiagnosis, in first continu-ous remission, and off chemotherapy. Each child had been randomized to receive 1 Portions of this article were presented at the annual meeting of the American Psychological Associa-
Social competence in children with IDDM and asthma: Child, teacher, and parent reports of children’s social adjustment, social performance, and social skills
- Journal of Pediatric Psychology
, 1995
"... Used Cavell's (1990) model of childhood social competence to compare the social competence in peer relations of 25 children (ages 8-10 years) with insulin-dependent diabetes mellitus (IDDM), 19 children with asthma, and 24 physically healthy children. Children were individually matched for econ ..."
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Cited by 8 (0 self)
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Used Cavell's (1990) model of childhood social competence to compare the social competence in peer relations of 25 children (ages 8-10 years) with insulin-dependent diabetes mellitus (IDDM), 19 children with asthma, and 24 physically healthy children. Children were individually matched for economic status, race, gender, and age. Children, their parents, and their teachers com-pleted measures of children's social adjustment, social performance, and social skills in peer relations. Contrary to hypotheses, no differences between the groups of children were noted on any of the measures of social competence. Results are discussed in terms of the resiliency of children's social competence to these chronic conditions. KEY WORDS: insulin-dependent diabetes mellitus; asthma; chronic illness; social competence; peer relations.
Psychological adjustment of adolescents with sickle cell disease: Relations with demographic, medical, and family competence variables
- Journal of Pediatric Psychology
, 1998
"... Objective: Investigate the hypothesis that family competence in addressing challenges associated with sickle cell disease (SCD) contributes to adolescents ' adjustment. Method: During routine clinic appointments, 80 adolescents (M age = 14.4 years) and their parents inde-pendently completed the ..."
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Cited by 6 (0 self)
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Objective: Investigate the hypothesis that family competence in addressing challenges associated with sickle cell disease (SCD) contributes to adolescents ' adjustment. Method: During routine clinic appointments, 80 adolescents (M age = 14.4 years) and their parents inde-pendently completed the Self-Report Family Inventory (SFI), which assesses family competence, and mea-sures of adolescent adjustment problems. Information related to disease severity was obtained from clinic files. Results: Regression analyses controlling for demographic and medical variables revealed that higher family competence was associated with fewer internalizing and externalizing behaviors by the adolescent; these relations were particularly true for younger adolescents and for girls. Parental reports of somatic com-plaints in girls were predicted by parental ratings of family competence. Discussion: Interventions for adolescents with SCD should be family-centered and should focus on strengthening the family's ability to manage stressors associated with parenting an adolescent with a chronic illness. Key words: sickle cell disease; family competence; adjustment; adolescents. Sickle cell disease (SCD) is a chronic, autosomal re-cessive red blood cell disorder characterized by ane-mia and recurrent episodes of severe pain. There are several major forms of the disease, each character-ized by a particular type of hemoglobin genotype. Hb SS is the homozygous condition carried by two abnormal genes. Hb SC and Hb S (thalassemia) are heterozygous conditions. In the United States, this disorder occurs primarily in the African American
